Methods for engaging stakeholders in comparative effectiveness research: A patient-centered approach to improving diabetes careAuthors: Julie A. Schmittdiel, Jay Desai, Emily B. Schroeder, Andrea R. Paolino, Gregory A. Nichols, Jean M. Lawrence, Patrick J. O’Connor, Kris A. Ohnsorg, Katherine M. Newton, John F. Steiner
Abstract/Implementation Lessons
• Engaging stakeholders in the research process has the potential to improve quality of care and the patient care experience.
• Online patient community surveys can elicit important topic areas for comparative effectiveness research.
• Stakeholder meetings with substantial patient representation, as well as representation from health care delivery systems and research funding agencies, are a valuable tool for selecting and refining pilot research and quality improvement projects.
• Giving patient stakeholders a deciding vote in selecting pilot research topics helps ensure their ‘voice’ is heard.
• Researchers and health care leaders should continue to develop best-practices and strategies for increasing patient involvement in comparative effectiveness and delivery science research.
Citation: chmittdiel JA, et al. Methods for engaging stakeholders in comparative effectiveness research: A patient-centered approach to improving diabetes care. Healthcare 2015 doi:10.1016/j.hjdsi.2015.02.005
Received: 27 August 2014 Revised: 20 January 2015 Accepted: 18 February 2015 Available online: 13 March 2015
Copyright: © 2015 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY-NC-ND license ( http://creativecommons.org/licenses/by-nc-nd/4.0/ ).
Funding source
This project was supported by Grant nos. R01HS022963-01 and R01HS019859 from the Agency for Healthcare Research and Quality. The content is solely the responsibility of the authors and does not necessarily represent the official views of the Agency for Healthcare Research and Quality. AHRQ had no role in the design, conduct, or reporting of this work. Dr. Schmittdiel received additional support from the NIDDK-funded Health Delivery Systems Center for Diabetes Translational Research (1P30 DK92924)
Conflict of interest disclosure statement
This statement accompanies the article “Methods for Engaging Stakeholders in Comparative Effectiveness Research: A Patient-Centered Approach to Improving Diabetes Care” authored by Julie Schmittdiel (corresponding author) Jay Desai, Emily Schroeder, Andrea Paolino, Gregory Nichols, Jean Lawrence, Patrick O’Connor, Kris Ohnsorg, Katherine Newton, and John Steiner, and submitted to Healthcare as an original article. The authors have no conflicts of interest to disclose.